This week the theme of Invisible Illness Week is SeeThe Invisible. Here are
30 Things You May Not Know About My Invisible Illness
1. The illnesses I live with are: Bipolar Disorder and it’s associated drawbacks, EDS and the degrading joint and tissue disorders that occur over time with the disease, PTSD, I am a nearly 20-year cervical cancer survivor. (I know, I don’t have Cancer anymore so it is not my invisible illness, but cool, right?)
2. I was diagnosed with it in the year: Invisible Illness One: Bipolar in 1989, but I was first sent to therapy in 1985 for “things I did that are (were) bad.” I was diagnosed with EDS by a specialist at UCLA on April 24th, 2012
3. But I had symptoms since: Bipolar, I started displaying reckless behavior in high school, but it did not get dangerous until college. My physical symptoms, while easy to cast off as “pronation,” “Osgood-Schlatter disease,” clumsiness as a child later turned into chronic and intractable pain as well as impossible to ignore symptoms after an accident in 2008.
4. The biggest adjustments I’ve had to make are: a change initially a change in stamina and activity as well as the ability to manage pain. Now, primarily I deal with keeping myself active so that I do not fall back into the rut of depression that at one time threatened to destroy what the illness did not.
5. Most people assume: I don’t even know anymore. I have lost the desire to presume or care about anyone’s assumptions about my illness or how I manage it. That is between me, my providers, and my husband. My concern now is advocating for illness as a whole and how the public looks upon all of us in the invisible illness community.
6. The hardest part about mornings are:I know that the first thing I MUST do when I get up is to take a shower. If I go downstairs to make coffee or feed the dogs before I shower and get dressed, then I get distracted by work or something else and it is hours before I get dressed. I am a person that has to have a schedule.
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