WhatTheJules 30 Things #SeeTheInvisible

Invisible Illness Week 2016 See The Invisible

This week the theme of Invisible Illness Week is SeeThe Invisible. Here are 

30 Things You May Not Know About My Invisible Illness

#SeeTheInvisible1. The illnesses I live with are: Bipolar Disorder and it’s associated drawbacks, EDS and the degrading joint and tissue disorders that occur over time with the disease, PTSD, I am a nearly 20-year cervical cancer survivor. (I know, I don’t have Cancer anymore so it is not my invisible illness, but cool, right?)

2. I was diagnosed with it in the year: Invisible Illness One: Bipolar in 1989, but I was first sent to therapy in 1985 for “things I did that are (were) bad.” I was diagnosed with EDS by a specialist at UCLA on April 24th, 2012

3. But I had symptoms since: Bipolar, I started displaying reckless behavior in high school, but it did not get dangerous until college. My physical symptoms, while easy to cast off as “pronation,” “Osgood-Schlatter disease,” clumsiness as a child later turned into chronic and intractable pain as well as impossible to ignore symptoms after an accident in 2008.

4. The biggest adjustments I’ve had to make are: a change initially a change in stamina and activity as well as the ability to manage pain. Now, primarily I deal with keeping myself active so that I do not fall back into the rut of depression that at one time threatened to destroy what the illness did not.

5. Most people assume: I don’t even know anymore. I have lost the desire to presume or care about anyone’s assumptions about my illness or how I manage it. That is between me, my providers, and my husband. My concern now is advocating for illness as a whole and how the public looks upon all of us in the invisible illness community.

rubberduck6. The hardest part about mornings are:I know that the first thing I MUST do when I get up is to take a shower. If I go downstairs to make coffee or feed the dogs before I shower and get dressed, then I get distracted by work or something else and it is hours before I get dressed. I am a person that has to have a schedule.

Read The Whole Article

cabloggersThank you, to all of our guest bloggers. If you are interested in contributing a news article, resources, or a blog, please email contact@chronicallyawesome.org. We would love to work with you!

Donate now to support ChronicallyAwesome.org.

Your donation helps The Chronically Awesome Foundation support the needs of the chronically ill. By helping us, you help the chronically ill learn to “swap illness for awesome.” Your tax-deductible donation not only keeps the lights on, but it also allows us to start new projects to further our mission.

Leave a Reply

Your email address will not be published. Required fields are marked *