May 6, 2017

News You Can Use: Laguna Niguel Proclaims Rare Disease Day

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Proclamation

Laguna Niguel Proclaims “Rare Disease Day” In The City


The City of Laguna Niguel
 ** proclaims Rare Disease Day February 28th, 2017 and presented The Chronically Awesome Foundation a proclamation for NORD. This is the first time the city has declared February 28th Rare Disease Day in the city. It was an honor to receive the proclamation on behalf of the one in 10 residents of our city, our state, and our nation who live with a rare disease.

We thank The Laguna Niguel City Council and the amazing residents of the city for their kindness and generosity to all members of the chronically ill community and we look forward to working with the city in the future. We look forward to next year when we meet again in February and work to see that in 2018 again Laguna Niguel proclaims Rare Disease Day.

Julianna with Laguna Niguel City Council

Julianna with Laguna Niguel City Council

Laguna Niguel Rare Disease Day Proclamation

About Rare Disease Day

Press Release: Today Is Rare Disease Day 2017:

rdd-logo-small#RareDiseaseDay 2017! With events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases!

With the theme of research, and the slogan, ‘With research, the possibilities are limitless’, #RareDiseaseDay 2017 is an opportunity to call on all researchers, universities, students, companies, policymakers and clinicians to do more research and to make them aware of the importance of research for the rare disease community. Read More…

 

 

**Look for an updated Laguna Niguel video soon that will include The Chronically Awesome Foundation as a part of the special community organizations