preston art kit

An Art Kit and A Smiling Face

An Art Kit And A Smiling Face To encourage you, our Chronically Awesome Community, to reach out to chronically ill children to not only bring joy to their lives but to bring happiness to your life that will make you more Chronically Awesome, we have created our art kit program. Philanthropy is something that alleviates[…]

Fibromyalgia Tenderpoints Map

Monica Radtke, Forever Fibromyalgia

Welcome to the Forever Fibromyalgia Chronically Awesome Blog from Monica Radtke My name is Monica Radtke. Welcome to Forever Fibromyalgia, my Chronically Awesome Blog. Let me tell you about myself. I am 47 years old and have lived in Minnesota my entire life. I was diagnosed with Fibromyalgia in September of 2007. I deal with[…]

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Preston Is Truly One Of A Kind

  Preston Is Truly One Of A Kind A disorder is considered rare when fewer than 200,000 people in the United States has the condition. Some of us with rare disorders go to the emergency room when something goes wrong, it is after office hours and we do not have a choice, but when we[…]

anais nin quote

Resolution To Take Baby Steps

Resolution To Take Baby Steps “Resolution To Take Baby Steps” is a guest post by our founder, Jules Shapiro. Originally posted on WhatTheJules.com, this post is not just a blog, it is an idea for a creative art project!   Happy New Year! I hope that you had fun last night. Making a resolution for the coming[…]

writing heals

Writing Heals

Writing Heals Originally published on WhatTheJules The Chronically Awesome Foundation was founded, in part, on the basic concept that writing heals. We believe that on the whole, art heals and that writing is one very powerful part of that. Everyone has a story to tell. We do not have to be great writers. We do not[…]

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Ellie: Gifts I Didn’t Ask For

Gifts I Didn’t Ask For (This blog by Ellie turned into a gift that I was not expecting. When you get to the end, her words will inspire you to look at your life as its Chronically Awesome gifts.) I meet the awesomely cool Jules Shapiro, founder and executive director of the Chronically Awesome Foundation[…]

Ellie: I Just Want To Be Seen

I Just Want To Be Seen A Guest Blog by Ellie I Googled invisible illness. I know what they are. I live with them every day, but I wanted to see what the internet had to say about them. The internet offers up a basic and obvious definition – a chronic health condition with no[…]

WhatTheJules 30 Things #SeeTheInvisible

This week the theme of Invisible Illness Week is SeeThe Invisible. Here are  30 Things You May Not Know About My Invisible Illness 1. The illnesses I live with are: Bipolar Disorder and it’s associated drawbacks, EDS and the degrading joint and tissue disorders that occur over time with the disease, PTSD, I am a nearly[…]

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5 Sleep Tips To Help Your Chronic Illness

5 Sleep Tips To Help People With Chronic Illness Sleep Better And Ease Pain A guest post by Jennifer Scott of SpiritFinder.org 5 Tips To Help People With Chronic Illness Sleep Better And Ease Pain By Jennifer Scott of SpiritFinder.org People with chronic illness and those who experience chronic pain, which can be directly associated with[…]