preston art kit

An Art Kit and A Smiling Face

An Art Kit And A Smiling Face To encourage you, our Chronically Awesome Community, to reach out to chronically ill children to not only bring joy to their lives but to bring happiness to your life that will make you more Chronically Awesome, we have created our art kit program. Philanthropy is something that alleviates[…]

Fibromyalgia Tenderpoints Map

Monica Radtke, Forever Fibromyalgia

Welcome to the Forever Fibromyalgia Chronically Awesome Blog from Monica Radtke My name is Monica Radtke. Welcome to Forever Fibromyalgia, my Chronically Awesome Blog. Let me tell you about myself. I am 47 years old and have lived in Minnesota my entire life. I was diagnosed with Fibromyalgia in September of 2007. I deal with[…]

pink sunglasses

Rare Disease Day: Emi’s Courage

 Emi’s Courage When we receive letters from the parents of children with chronic and often rare diseases, the first thing parents tell us is about the strength and courage their children have. When we learned of Emi’s courage we knew we were learning about someone special. Jules daughter had a rare disorder and has often[…]

anais nin quote

Resolution To Take Baby Steps

Resolution To Take Baby Steps “Resolution To Take Baby Steps” is a guest post by our founder, Jules Shapiro. Originally posted on WhatTheJules.com, this post is not just a blog, it is an idea for a creative art project!   Happy New Year! I hope that you had fun last night. Making a resolution for the coming[…]

red flag

Misdiagnosed With Addiction by Patti

My Life With Chronic Pain After Being Misdiagnosed With Addiction By Patti A. I am writing this article from the perspective of being a patient who has a Chronic Pain Condition as well as having an unwarranted, Doctor imposed label of “Addiction”. What no one seems to really understand is that my Chronic Pain Condition is[…]

writing heals

Writing Heals

Writing Heals Originally published on WhatTheJules The Chronically Awesome Foundation was founded, in part, on the basic concept that writing heals. We believe that on the whole, art heals and that writing is one very powerful part of that. Everyone has a story to tell. We do not have to be great writers. We do not[…]

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Ellie: Gifts I Didn’t Ask For

Gifts I Didn’t Ask For (This blog by Ellie turned into a gift that I was not expecting. When you get to the end, her words will inspire you to look at your life as its Chronically Awesome gifts.) I meet the awesomely cool Jules Shapiro, founder and executive director of the Chronically Awesome Foundation[…]