June 25, 2016

June Board Blog

June Advisory Board Blog

Summer Is Here! Hello, Sun and Hello, Chronically Awesome everywhere!

As we arrive at the mid-point of the year, June, and finally begin to warm our aching bones, I am happy to be able to show you new content on our site.

While things of the personal tend to step between me and the work of this foundation that I love so much, I am still happy with our “News You Can Use”, and getting more conditions up in the condition center. Because I am very busy, I am always looking for help by way of bloggers, article writers, and condition diary keepers. You can reach me at julianna@chronicallyawesome.org.

sunshine #june blogAs it heats up and we spend more time in the sun, do not forget to stay hydrated and to use sunscreen. You can spend some time out in the sun without your sunscreen so that you get your Vitamin D. Consult your doctor if you do not know how much time is right for your skin type.

Summer is also a great time to get into the pool and stretch, kick your feet, or do a few laps. Swimming and water resistance is an excellent form of exercise!

The foundation is looking into new ways to continue funding our “Year of The Child” project. As we do, I remind you that any funds we receive from your donations this year go toward giving a Chronically Awesome Child the ability to express themselves artistically. Visit our fiscal sponsor Fractured Atlas where you can make your tax-deductible donation and know that you have helped a child swap illness for awesome while they are young and need that spark of joy. Meanwhile, we will continue to explore or new paths.

support #juneSupport Groups

Let’s talk about support groups. We have two chat rooms. One room for Our Depression, one for Chronically Awesome. We also have video chats for Google+’s Chronically Awesome Community. To schedule our support groups for a time that is the most convenient for the most people we need your feedback. Posts at the top of each of the two of these Facebook pages are available in July for your comments. Please let us know if you prefer weekday or weekend, and if you are available afternoons or evenings. We understand that straddling two time zones is our greatest challenge and is why we get fewer than desired when we hold our groups.

Thank you, as always, for identifying and proudly calling yourself #ChronicallyAwesome. Every time that you do this, you are showing one more person that there is a more positive, creative way to live with chronic illness. That there are things that we can live that will help our symptoms, create positivity, and that we can swap illness for awesome.


Au milieu de l’hiver, j’apprenais enfin qu’il y avait en moi un été invincible.
In the depth of winter, I finally learned that within me there lay an invincible summer.

– Albert Camus, Noces Suivi De L’ete

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