An Art Kit and A Smiling Face

An Art Kit and A Smiling Face

An Art Kit And A Smiling Face To encourage you, our Chronically Awesome Community, to reach out to chronically ill children to not only bring joy to their lives but to bring happiness to your life that will make you more Chronically Awesome, we have created our art kit program. Philanthropy is something that alleviates[…]

Monica Radtke, Forever Fibromyalgia

Monica Radtke, Forever Fibromyalgia

Welcome to the Forever Fibromyalgia Chronically Awesome Blog from Monica Radtke My name is Monica Radtke. Welcome to Forever Fibromyalgia, my Chronically Awesome Blog. Let me tell you about myself. I am 47 years old and have lived in Minnesota my entire life. I was diagnosed with Fibromyalgia in September of 2007. I deal with[…]

Preston Is Truly One Of A Kind

Preston Is Truly One Of A Kind

  Preston Is Truly One Of A Kind A disorder is considered rare when fewer than 200,000 people in the United States has the condition. Some of us with rare disorders go to the emergency room when something goes wrong, it is after office hours and we do not have a choice, but when we[…]

Rare Disease Day: Emi’s Courage

Rare Disease Day: Emi’s Courage

 Emi’s Courage When we receive letters from the parents of children with chronic and often rare diseases, the first thing parents tell us is about the strength and courage their children have. When we learned of Emi’s courage we knew we were learning about someone special. Jules daughter had a rare disorder and has often[…]

Rare Disease Day

Rare Disease Day

Chronically Awesome: A Proud Rare Disease Day Partner “With research, the possibilities are limitless” Press Release: Today Is Rare Disease Day 2017: Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases! With the theme of research,[…]

Resolution To Take Baby Steps

Resolution To Take Baby Steps

Resolution To Take Baby Steps “Resolution To Take Baby Steps” is a guest post by our founder, Jules Shapiro. Originally posted on WhatTheJules.com, this post is not just a blog, it is an idea for a creative art project!   Happy New Year! I hope that you had fun last night. Making a resolution for the coming[…]

Misdiagnosed With Addiction by Patti

Misdiagnosed With Addiction by Patti

My Life With Chronic Pain After Being Misdiagnosed With Addiction By Patti A. I am writing this article from the perspective of being a patient who has a Chronic Pain Condition as well as having an unwarranted, Doctor imposed label of “Addiction”. What no one seems to really understand is that my Chronic Pain Condition is[…]