Rare Disease Day

Rare Disease Day

Chronically Awesome: A Proud Rare Disease Day Partner   February 28, 2017, is the 10th Rare Disease Day An International Event   Rare Disease Day is the day that patients and their families & caregivers, as well as patient advocate organizations, politicians, medical professionals, researchers, and related industries, come together to raise awareness of rare[…]

Resolution To Take Baby Steps

Resolution To Take Baby Steps

Resolution To Take Baby Steps “Resolution To Take Baby Steps” is a guest post by our founder, Jules Shapiro. Originally posted on WhatTheJules.com, this post is not just a blog, it is an idea for a creative art project!   Happy New Year! I hope that you had fun last night. Making a resolution for the coming[…]

Misdiagnosed With Addiction by Patti

Misdiagnosed With Addiction by Patti

My Life With Chronic Pain After Being Misdiagnosed With Addiction By Patti A. I am writing this article from the perspective of being a patient who has a Chronic Pain Condition as well as having an unwarranted, Doctor imposed label of “Addiction”. What no one seems to really understand is that my Chronic Pain Condition is[…]

Writing Heals

Writing Heals

Writing Heals Originally published on WhatTheJules The Chronically Awesome Foundation was founded, in part, on the basic concept that writing heals. We believe that on the whole, art heals and that writing is one very powerful part of that. Everyone has a story to tell. We do not have to be great writers. We do not[…]

Ellie: Gifts I Didn’t Ask For

Ellie: Gifts I Didn’t Ask For

Gifts I Didn’t Ask For (This blog by Ellie turned into a gift that I was not expecting. When you get to the end, her words will inspire you to look at your life as its Chronically Awesome gifts.) I meet the awesomely cool Jules Shapiro, founder and executive director of the Chronically Awesome Foundation[…]

Ellie: I Just Want To Be Seen

Ellie: I Just Want To Be Seen

I Just Want To Be Seen A Guest Blog by Ellie I Googled invisible illness. I know what they are. I live with them every day, but I wanted to see what the internet had to say about them. The internet offers up a basic and obvious definition – a chronic health condition with no[…]

WhatTheJules 30 Things #SeeTheInvisible

WhatTheJules 30 Things #SeeTheInvisible

This week the theme of Invisible Illness Week is SeeThe Invisible. Here are  30 Things You May Not Know About My Invisible Illness 1. The illnesses I live with are: Bipolar Disorder and it’s associated drawbacks, EDS and the degrading joint and tissue disorders that occur over time with the disease, PTSD, I am a nearly[…]

United Advocacy Australia Invisible Illness Week 30 Things

United Advocacy Australia Invisible Illness Week 30 Things

Thank you to United Advocacy Australia for sharing your Invisible Illness Week “30 Things” Meme with The Chronically Awesome Foundation. Read the original post here.   1.The illness‘ I live with are: Rheumatoid Arthritis, Fibromyalgia, Polymyalgia Rheumatica, General Anxiety Disorder, Agoraphobia, Social Anxiety Disorder, Migraines, Temporomandibular joint Disorder, I also have Hypertension and GERD 2.I was[…]

5 Sleep Tips To Help Your Chronic Illness

5 Sleep Tips To Help Your Chronic Illness

5 Sleep Tips To Help People With Chronic Illness Sleep Better And Ease Pain A guest post by Jennifer Scott of SpiritFinder.org 5 Tips To Help People With Chronic Illness Sleep Better And Ease Pain By Jennifer Scott of SpiritFinder.org People with chronic illness and those who experience chronic pain, which can be directly associated with[…]